Children with chronic Illness support group

I'm a mother of a child with a rare condition.

My daughter has an extremely rare condition.  So rare that I have only found one small support group.  I figured that other parents of children that are ill could also give support to me and I started looking around the internet.  I never found one where I could fit in.  They are all usually geared for one specific illness or another.  I thought I would try and start my own group for support for parents for children who have a chronic illnesses.  I need to see what others are experiencing with their child.  We all have to be going through similar experiences even if the condition of the child are different.    So it has brought me to this.